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Minutes for HB2338 - Committee on Public Health and Welfare
Short Title
Designating sickle cell disease awareness week and requiring KDHE to study and report on topics related to sickle cell disease.
Minutes Content for Tue, Mar 14, 2023
Jenna Moyer, Staff Revisor gave an overview of the bill.
Kevin Wake testified in support of HB2338. He is a sickle cell disease patient and explained that sickle cell disease is a genetic blood disorder that affects over 100,000 patients in the US and over 700 Kansans. One in 13 African Americans are estimated to be trait carriers of the disease. Sickle cell causes a person's red blood cells to be shaped like a crescent moon or a banana instead of being round, which prohibits the cells from carrying the appropriate amount of oxygen throughout the body. He explained that passage of HB2338 will establish the 3rd full week of September as sickle cell awareness week in the state and will be be proactive in reviewing available treatments for sickle cell, and better prepare the state to provide treatment for patients. (Attachment 1)
He took questions from committee members.
Proponent, written only testimony was submitted by:
Alyson Dalrymple, Deputy Director, Kansas Department of Health and Environment (Attachment 2)
Chairperson Gossage closed the hearing on SB2338.
